February 1, 2010 - $75,000 raised in 24 hour ski marathon Supporting Individuals, Families And Researchers In The Cystinosis Community
News And Events
What is Cystinosis
Cystinosis is a rare inherited disease occurring in about 1 in 200,000 births within developed countries. It occurs when the mechanism removing excess cystine (an amino acid) breaks down.
However, these days with better understanding and earlier diagnosis, Cystinotics are able to lead a longer, fuller life. It is the Foundation's aim to aid researchers and Cystinotics to strive for continued improvements.
International Conference
