International Conference Details

The largest gathering in the world of Cystinosis patients, their families and medical experts takes place 24-26 July, 2014 at the Marriott Renaissance, City Centre in Manchester, UK.

Registration is required, to find out how to register please visit the Conference Website.

Through our common efforts and immense dedication we are all working together to build a better future for our children and grandchildren. Please join us this summer and share your view with our global community.

We look forward to welcoming you in Manchester!

More Information


What is Cystinosis?

Cystinosis is a rare inherited disease occurring in about 1 in 200,000 births within developed countries. It occurs when the mechanism removing excess cystine (an amino acid) breaks down.

However, these days with better understanding and earlier diagnosis, people with cystinosis are able to lead a longer, fuller life. It is the Foundation's aim to aid researchers and the cystinosis community to strive for continued improvements.

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