International Conference Details

The largest gathering in the world of Cystinosis patients, their families and medical experts takes place 24-26 July, 2014 at the Marriott Renaissance, City Centre in Manchester, UK.

Registration is required, to find out how to register please visit the Conference Website.

Through our common efforts and immense dedication we are all working together to build a better future for our children and grandchildren. Please join us this summer and share your view with our global community.

We look forward to welcoming you in Manchester!

More Information

What is Cystinosis?

Cystinosis is a rare inherited disease occurring in about 1 in 200,000 births within developed countries. It occurs when the mechanism removing excess cystine (an amino acid) breaks down.

However, these days with better understanding and earlier diagnosis, people with cystinosis are able to lead a longer, fuller life. It is the Foundation's aim to aid researchers and the cystinosis community to strive for continued improvements.

Update on Prodrugs Research at Sunderland University Sunderland University has given us an update on their research into the use of prodrugs as a [...] Read more...
Charity Fun Day for Layla A big fundraising fun day event is taking place in aid of Layla, a brave 3 year old girl who [...] Read more...
Jessica Jondle Publishes Book About Life With Cystinosis Jessica Jondle, 30, a teacher from California, USA, has written a book about her experiences of [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.