Contact Us
Site Map
   
Home News / Events About Us Learn More Support Us Donate Shop

The Cystinosis Foundation UK - Forever Growing The Cystinosis Foundation UK - Forever Growing

Supporting UK families and researchers dealing with this genetic disorder

International Conference June 2008, Dublin!
Irish Flag The bi-annual International Conference will be hosted by the Cystinosis Foundation Ireland on June 27-28, 2008. For more details, see our events pages.

Support Us With Your Shopping
Cystinosis Foundation UK webshop Use our new on-line store at www.buy.at/ cystinosis and the retailers you see advertised will make a donation to us if you purchase goods via the links in our store. It costs you nothing, but raises money for a good cause!

Buy One of Our Tea Towels! The Foundation is able to provide branded Cystinosis Foundation UK tea-towels.

Cystinosis is a rare inherited disease occurring in about 1 in 200,000 births within developed countries. It occurs when the mechanism removing excess cystine (an amino acid) breaks down. In the past, it was rare for Cystinotics to survive into adulthood.

However, with better understanding and earlier diagnosis, it is possible for sufferers to lead a longer, fuller life. It is the Foundation's aim to aid researchers and sufferers to achieve this.

Cystinosis Foundation UK webshop