2010 International Conference Report
Paddock Wood Half Marathon Posted January 28, 2012
If you go down to Paddock Wood on the 25th March, you’re sure of a big surprise… Because among the… Read More
Supporting Individuals, Families And Researchers In The Cystinosis Community
News And Events
Paddock Wood Half Marathon Posted January 28, 2012
2012 International Conference Confirmed Posted February 5, 2012
The 7th International Cystinosis Conference will be held at the Marriott Charles de Gaulle, Paris, France between June 28 –… Read More
Quizzy Rascals Posted May 7, 2012
Well done to CFUK Trustee Neil Hutchison and his wife Alex, who raised £1,088 (and 15 pence!) through a quiz… Read More
Sisters raise awareness in national newspapers Posted May 6, 2012
Sisters Emily,3, and Poppy-Mae,23 months, have recently raised awareness for cystinosis by appearing in both the Sun and Daily Mail… Read More
An Eggs-ellent Easter Fundraiser Posted April 10, 2012
Kelly Chilvers, mother of 17 month old Daniel Howell who has Cystinosis, is proud to report a very successful fundraiser… Read More
Derby Winners Posted March 8, 2012
2012 is a year where many hopeful athletes undergo hours of training and physical exertion in order to better themselves… Read More
Card Gains June Challenge Posted March 3, 2012
On June 26th around 80 people will be taking part in the 2012 Card Gains Olympic Challenge! The challenges involves… Read More
What is Cystinosis
Cystinosis is a rare inherited disease occurring in about 1 in 200,000 births within developed countries. It occurs when the mechanism removing excess cystine (an amino acid) breaks down.
However, these days with better understanding and earlier diagnosis, Cystinotics are able to lead a longer, fuller life. It is the Foundation's aim to aid researchers and Cystinotics to strive for continued improvements.
