Paddock Wood Half Marathon Posted January 28, 2012
If you go down to Paddock Wood on the 1st April, you’re sure of a big surprise… Because among the… Read More
Paddock Wood Half Marathon Posted January 28, 2012
If you go down to Paddock Wood on the 1st April, you’re sure of a big surprise… Because among the… Read More
Want To Talk About Cystinosis? Posted February 4, 2012
The Foundation is trialing a "Once A Month Chat Line" to allow those affected by cystinosis to have a discussion… Read More
Cystinosis Foundation UK now on Twitter Posted January 29, 2012
We are now on Twitter! The Cystinosis Foundation are now on Twitter, and you can follow all our latest new… Read More
A Short Cut To Success Posted January 24, 2012
On 30th January, a sponsored hair-cut will be held for the Cystinosis Foundation UK. Charity trustee, David Benford, picks up… Read More
Theme Park Fun For Harley Posted January 11, 2012
Five-year-old Harley Ingham, who has cystinosis, is set to enjoy a trip with his family to Lego Land, thanks to… Read More
Cystinosis is a rare inherited disease occurring in about 1 in 200,000 births within developed countries. It occurs when the mechanism removing excess cystine (an amino acid) breaks down.
However, these days with better understanding and earlier diagnosis, Cystinotics are able to lead a longer, fuller life. It is the Foundation's aim to aid researchers and Cystinotics to strive for continued improvements.