2010 International Conference Report
(Posted: 4 February, 2012 )
The Foundation is trialing a "Once A Month Chat Line" to allow those affected by cystinosis to have a discussion… Read More
Events
Want To Talk About Cystinosis?
(Posted: 4 February, 2012 )
(Posted: 4 February, 2012 )
Paddock Wood Half Marathon
(Posted: 28 January, 2012 )
(Posted: 28 January, 2012 )
If you go down to Paddock Wood on the 1st April, you’re sure of a big surprise… Because among the… Read More
A Short Cut To Success
(Posted: 24 January, 2012 )
(Posted: 24 January, 2012 )
On 30th January, a sponsored hair-cut will be held for the Cystinosis Foundation UK. Charity trustee, David Benford, picks up… Read More
12th May 2012: Fishing Competition In Kent
(Posted: 2 January, 2012 )
(Posted: 2 January, 2012 )
On 12th May 2012, the Impy Inc Fishing Competition will be held at Greenacres Farm Fishery in Biddenden in Kent…. Read More
UK Conference Programme Now Available
(Posted: 5 August, 2011 )
(Posted: 5 August, 2011 )
The Cystinosis Foundation UK conference programme is now available. The conference takes place on September 24th at the Manchester Conference… Read More
UK Conference Confirmation – September 24th
(Posted: 20 July, 2011 )
(Posted: 20 July, 2011 )
A huge number of you have registered your interest in the UK conference and there have been several requests to… Read More
19th-21st May: Day Of Hope Conference, California
(Posted: 1 May, 2011 )
(Posted: 1 May, 2011 )
The Cystinosis Research Foundation are pleased to announce their second Day Of Hope Family Conference in the Balboa Bay Club,… Read More
Monster Sheffield Sponsored Walk – 9th April 2011
(Posted: 26 February, 2011 )
(Posted: 26 February, 2011 )
On 9th April 2011, a bumper 11 mile sponsored walk will be taking place in Sheffield in support of the… Read More
Summer Concert For Cystinosis
(Posted: 6 January, 2011 )
(Posted: 6 January, 2011 )
The Folkestone & Hythe Orchestral Society’s Annual Summer Concert will be held on Saturday 9th July 2011 at the Saga… Read More
IMPORTANT – CONFERENCE SHUTTLE BUS TIME CHANGES
(Posted: 10 September, 2010 )
(Posted: 10 September, 2010 )
To all those going to the conference, please note the shuttle bus times have changed – please contact Quick Line… Read More
Support The Super Cycle Challenge
(Posted: 26 June, 2010 )
(Posted: 26 June, 2010 )
Please support Tom Naysmith and John Eldridge as they tackle the 108 miles and 5000 meters of ascent (that’s 3… Read More
2010 International Conference (Update September 13th)
(Posted: 28 March, 2010 )
(Posted: 28 March, 2010 )
To all those going to the conference, please note the shuttle bus times have changed – please contact Quick Line… Read More
Support London Marathon Man Lee Vallett
(Posted: 14 March, 2010 )
(Posted: 14 March, 2010 )
Next month keen runner Lee Vallett will be running the London Marathon for the third time, and again fundraising on… Read More
April 4th 2010 – 65 Mile Walk
(Posted: 21 February, 2010 )
(Posted: 21 February, 2010 )
On April 4th 2010, a group of walkers, led by Colin Buist will undertake a 65 mile walk along Speyside… Read More
Olly Murs At The River Bar – 7th Feb 2010
(Posted: 27 January, 2010 )
(Posted: 27 January, 2010 )
We are very pleased to announce a concert in aid of the Cystinosis Foundation UK, featuring X-Factor star Olly Murs,… Read More
