2010 International Conference Report
(Posted: 4 February, 2012 )
The Foundation is trialing a "Once A Month Chat Line" to allow those affected by cystinosis to have a discussion… Read More
News
Want To Talk About Cystinosis?
(Posted: 4 February, 2012 )
(Posted: 4 February, 2012 )
Cystinosis Foundation UK now on Twitter
(Posted: 29 January, 2012 )
(Posted: 29 January, 2012 )
We are now on Twitter! The Cystinosis Foundation are now on Twitter, and you can follow all our latest new… Read More
Paddock Wood Half Marathon
(Posted: 28 January, 2012 )
(Posted: 28 January, 2012 )
If you go down to Paddock Wood on the 1st April, you’re sure of a big surprise… Because among the… Read More
A Short Cut To Success
(Posted: 24 January, 2012 )
(Posted: 24 January, 2012 )
On 30th January, a sponsored hair-cut will be held for the Cystinosis Foundation UK. Charity trustee, David Benford, picks up… Read More
Theme Park Fun For Harley
(Posted: 11 January, 2012 )
(Posted: 11 January, 2012 )
Five-year-old Harley Ingham, who has cystinosis, is set to enjoy a trip with his family to Lego Land, thanks to… Read More
12th May 2012: Fishing Competition In Kent
(Posted: 2 January, 2012 )
(Posted: 2 January, 2012 )
On 12th May 2012, the Impy Inc Fishing Competition will be held at Greenacres Farm Fishery in Biddenden in Kent…. Read More
Who Are Orphan Europe
(Posted: 27 December, 2011 )
(Posted: 27 December, 2011 )
Orphan Europe were one of our sponsors at the Cystinosis UK conference held in Manchester in September this year for… Read More
Woman With Cystinosis Gives Birth
(Posted: 21 December, 2011 )
(Posted: 21 December, 2011 )
28-year-old Alison Kirk, from Wallasey, Wirral, has cystinosis and has been on kidney dialysis since she was 11. However, despite… Read More
Newsletter – November 2011
(Posted: 16 December, 2011 )
(Posted: 16 December, 2011 )
Issue 20 (November 2011) of our newsletter has recently been published and if you are a member of the Foundation… Read More
Wrist Bands
(Posted: 11 December, 2011 )
(Posted: 11 December, 2011 )
We have a new stock of wristbands for sale. Please contact us if you wish to purchase any. They cost… Read More
Annual Review
(Posted: 6 December, 2011 )
(Posted: 6 December, 2011 )
Quite simply, what a year! The Cystinosis Foundation UK has been going for over ten years now, but this year… Read More
Another Amazing USA Fundraiser
(Posted: 25 November, 2011 )
(Posted: 25 November, 2011 )
Congratulations to the Cystinosis Research Foundation on yet another successful golf day fundraiser. The Cystinosis Research Foundation raised over $215,000… Read More
Cycle In Memory Of Acacia
(Posted: 20 November, 2011 )
(Posted: 20 November, 2011 )
Acacia Dawn Robinson was only 4 months old when, tragically, severe heart complications ended her life prematurely. As a mark… Read More
Fundraising Update
(Posted: 18 November, 2011 )
(Posted: 18 November, 2011 )
The Foundation is proud to report that the latest fundraising total is a fantastic £265,208.04. We really appreciate the efforts… Read More
Sock Site Exciting Success
(Posted: 15 November, 2011 )
(Posted: 15 November, 2011 )
Congratulations and a big thank you to the Yates family for all their work in creating TheSockDrawer auction website, raising… Read More
