2010 International Conference Report
(Posted: 7 May, 2012 )
Well done to CFUK Trustee Neil Hutchison and his wife Alex, who raised £1,088 (and 15 pence!) through a quiz… Read More
News
Quizzy Rascals
(Posted: 7 May, 2012 )
(Posted: 7 May, 2012 )
Sisters raise awareness in national newspapers
(Posted: 6 May, 2012 )
(Posted: 6 May, 2012 )
Sisters Emily,3, and Poppy-Mae,23 months, have recently raised awareness for cystinosis by appearing in both the Sun and Daily Mail… Read More
An Eggs-ellent Easter Fundraiser
(Posted: 10 April, 2012 )
(Posted: 10 April, 2012 )
Kelly Chilvers, mother of 17 month old Daniel Howell who has Cystinosis, is proud to report a very successful fundraiser… Read More
Derby Winners
(Posted: 8 March, 2012 )
(Posted: 8 March, 2012 )
2012 is a year where many hopeful athletes undergo hours of training and physical exertion in order to better themselves… Read More
Card Gains June Challenge
(Posted: 3 March, 2012 )
(Posted: 3 March, 2012 )
On June 26th around 80 people will be taking part in the 2012 Card Gains Olympic Challenge! The challenges involves… Read More
Fundraising Update – Almost There
(Posted: 24 February, 2012 )
(Posted: 24 February, 2012 )
We set ourselves the target of raising £300,000 to help support research for the improvement of cystinosis treatments. By November… Read More
Share Your Experiences With Others
(Posted: 21 February, 2012 )
(Posted: 21 February, 2012 )
The Foundation is trialing a “Once A Month Chat Line” to allow those affected by cystinosis to have a discussion… Read More
Forever Growing – New Trustees
(Posted: 16 February, 2012 )
(Posted: 16 February, 2012 )
The Cystinosis Foundation UK are pleased to announce the appointment of 3 new trustees to the charity. The last few… Read More
Jessica Jondle Publishes Book About Life With Cystinosis
(Posted: 14 February, 2012 )
(Posted: 14 February, 2012 )
Jessica Jondle, 30, a teacher from California, USA, has written a book about her experiences of living with cystinosis. Diagnosed… Read More
Organ Donation – A Family’s Perspective
(Posted: 12 February, 2012 )
(Posted: 12 February, 2012 )
Facing the prospect of a major organ transplant is a big enough ordeal in itself. Knowing that the organ was… Read More
Prodrugs Research at University of Sunderland
(Posted: 10 February, 2012 )
(Posted: 10 February, 2012 )
Our thanks go to Professor Roz Anderson, at Sunderland University, for providing us with a recent update on her team’s… Read More
2012 International Conference Confirmed
(Posted: 5 February, 2012 )
(Posted: 5 February, 2012 )
The 7th International Cystinosis Conference will be held at the Marriott Charles de Gaulle, Paris, France between June 28 –… Read More
Want To Talk About Cystinosis?
(Posted: 4 February, 2012 )
(Posted: 4 February, 2012 )
The Foundation is trialing a "Once A Month Chat Line" to allow those affected by cystinosis to have a discussion… Read More
Cystinosis Foundation UK now on Twitter
(Posted: 29 January, 2012 )
(Posted: 29 January, 2012 )
We are now on Twitter! The Cystinosis Foundation are now on Twitter, and you can follow all our latest new… Read More
Paddock Wood Half Marathon
(Posted: 28 January, 2012 )
(Posted: 28 January, 2012 )
If you go down to Paddock Wood on the 25th March, you’re sure of a big surprise… Because among the… Read More
