2010 International Conference Report
(Posted: 9 November, 2011 )
Nine-year-old Thomas Goulsbra has Cystinosis. Recently he also had the added complication of going through a lumbar puncture to relieve… Read More
News
A Wish Come True For Thomas
(Posted: 9 November, 2011 )
(Posted: 9 November, 2011 )
Swimmer’s Success For Foundation
(Posted: 8 November, 2011 )
(Posted: 8 November, 2011 )
Congratulations to Ethne Wright who swam 200 lengths of her local swimming pool, the Esporta in Belfast, on 5th October… Read More
Sarah Laing on ITV television
(Posted: 20 October, 2011 )
(Posted: 20 October, 2011 )
Twenty year-old Sarah Laing has Cystinosis. Her story and the research being undertaken at Sunderland University, not far from where… Read More
UK Cystinosis Conference 2011
(Posted: 13 October, 2011 )
(Posted: 13 October, 2011 )
On 24th September 2011, over 100 people attended the UK Cystinosis conference at the Manchester Conference Centre- the first UK… Read More
Cystinosis – The Board Game!
(Posted: 10 October, 2011 )
(Posted: 10 October, 2011 )
We’re pleased to announce Nephropathic Cystinosis Quest, a board game about Cystinosis. The game, is aimed at those 7 years… Read More
Garage Sale Success
(Posted: 7 October, 2011 )
(Posted: 7 October, 2011 )
Congratulations, and a big thank you, to Amy Mace who managed to raise £220 from her garage sale on September… Read More
Berlin Wallies Wonder
(Posted: 29 September, 2011 )
(Posted: 29 September, 2011 )
A huge congratulations to the Berlin Wallies who completed the Berlin Marathon on Sunday 25th September and raised a whopping… Read More
Spend And Raise
(Posted: 26 September, 2011 )
(Posted: 26 September, 2011 )
Our on-line referral eStore has now been rebranded as Spend And Raise. Before you make any purchase on-line, check out… Read More
Morven’s Story In The News
(Posted: 12 September, 2011 )
(Posted: 12 September, 2011 )
Morven, daughter of Alex and Neil Hutchison, was diagnosed with Cystinosis at 9 months old. Since the diagnosis the family,… Read More
Help Cystinosis Research At The UK Conference
(Posted: 4 September, 2011 )
(Posted: 4 September, 2011 )
Chairman, Roy Forsyth, explains how you can help with Cystinosis Research if you are attending the Cystinosis UK Conference in… Read More
The Robert Gordon University Receive £100,000 Grant
(Posted: 29 August, 2011 )
(Posted: 29 August, 2011 )
The Robert Gordon University has recently been awarded a grant of over £100,000 to continue its research into eye gels…. Read More
Over Quarter Of A Million Now Raised!!!
(Posted: 25 August, 2011 )
(Posted: 25 August, 2011 )
Only 9 months after I reported that our research funds appeal had raised over £200,000, it is incredibly pleasing for… Read More
Foundation Looking For New Trustee
(Posted: 5 August, 2011 )
(Posted: 5 August, 2011 )
Would you like to be on the committee of the Cystinosis Foundation UK? Our charity is over 10 years old… Read More
UK Conference Programme Now Available
(Posted: 5 August, 2011 )
(Posted: 5 August, 2011 )
The Cystinosis Foundation UK conference programme is now available. The conference takes place on September 24th at the Manchester Conference… Read More
Positive Results On Slow Release Cysteamine Trials
(Posted: 2 August, 2011 )
(Posted: 2 August, 2011 )
Raptor Pharmaceutical Phase 3 trials with slow release Cysteamine have yielded positive results and the firm is looking to extend… Read More
