2010 International Conference Report
(Posted: 25 July, 2011 )
Four friends, hence forth known as the "Berlin Wallies" have signed up to do the Berlin Marathon to raise money… Read More
News
Berlin Wallies Marathon
(Posted: 25 July, 2011 )
(Posted: 25 July, 2011 )
Sky Dive & School Fundraising Events Top £3,000
(Posted: 23 July, 2011 )
(Posted: 23 July, 2011 )
A sky diving teacher and a week of school fundraising events has raised over £3,000 for the Cystinosis Foundation UK!… Read More
UK Conference Confirmation – September 24th
(Posted: 20 July, 2011 )
(Posted: 20 July, 2011 )
A huge number of you have registered your interest in the UK conference and there have been several requests to… Read More
Golfing Record Broken In Aid Of Cystinosis
(Posted: 18 July, 2011 )
(Posted: 18 July, 2011 )
Congratulations to 27-year-old Geno Bonnalie, of Lewiston, Idaho, USA, who set a new world record for playing the most holes… Read More
Cystinosis Foundation USA July 2011 Newsletter Released
(Posted: 12 July, 2011 )
(Posted: 12 July, 2011 )
The Cystinosis Foundation USA has released their July 2011 newsletter detailing their progress in funding research, support for organisations around… Read More
Have you registered with the Cure Cystinosis International Registry (CCIR)?
(Posted: 28 June, 2011 )
(Posted: 28 June, 2011 )
If you or your child suffers from Cystinosis then the CCIR are calling for you to register. The CCIR is… Read More
Cystinosis Research Foundation Promotional Video 2011
(Posted: 25 June, 2011 )
(Posted: 25 June, 2011 )
The Cystinosis Research Foundation, USA, has released a series of videos from recent events they have undertaken, as well as… Read More
Cystinosis Foundation USA Newsletter Released
(Posted: 21 June, 2011 )
(Posted: 21 June, 2011 )
The Cystinosis Foundation USA has released their most recent newsletter detailing their progress in funding research, support for organisations around… Read More
Sheffield Walk – Final Total Announced
(Posted: 19 June, 2011 )
(Posted: 19 June, 2011 )
The total amount raised from the Sheffield Walk, that took place in April this year in aid of the Cystinosis… Read More
“Team Kempy” on Radio 5 Live plug the Cystinosis Foundation UK
(Posted: 6 June, 2011 )
(Posted: 6 June, 2011 )
Team Kempy managed to get “spotted” by Radio 5 Live who were reporting from Greenwich, the start location for the… Read More
USA Charity Night raises $1.3m!!
(Posted: 3 June, 2011 )
(Posted: 3 June, 2011 )
The Cystinosis Research Foundation in the USA has successfully raised $1.3 million in a single night! Their annual fundraiser dinner,… Read More
Boys Brigade Old Boys Football Fundraiser For Foundation
(Posted: 25 May, 2011 )
(Posted: 25 May, 2011 )
The Cystinosis Foundation UK would like to thank all the players and members of the 118th and 92nd Boys Brigade… Read More
Register For The UK Conference
(Posted: 23 May, 2011 )
(Posted: 23 May, 2011 )
The Cystinosis Foundation UK is organising a one day conference on Saturday 24th September at the Manchester Conference Centre and… Read More
Sunderland University Receive Funding From USA
(Posted: 20 May, 2011 )
(Posted: 20 May, 2011 )
Researchers at Sunderland University have recently received an £80,000 grant from the Cystinosis Research Network in the USA to help… Read More
The Sheffield Walk Wonder
(Posted: 10 May, 2011 )
(Posted: 10 May, 2011 )
On the 9th April 2011 one of the largest ever events in aid of the Cystinosis Foundation UK took place… Read More
