Personal Stories

Sarah Laing on ITV television
(Posted: 20 October, 2011 )

Twenty year-old Sarah Laing has Cystinosis. Her story and the research being undertaken at Sunderland University, not far from where… Read More

Morven’s Story In The News
(Posted: 12 September, 2011 )

Morven, daughter of Alex and Neil Hutchison, was diagnosed with Cystinosis at 9 months old. Since the diagnosis the family,… Read More

Serena Celebrates 21st Anniversary Of Transplant
(Posted: 14 April, 2011 )

It was in 1990 that Sue Scott took the decision to donate a kidney to her daughter, Serena, who has… Read More

The Forsyth Story On Television
(Posted: 4 September, 2009 )

Lena Forsyth was diagnosed with Cystinosis at 7 months old, changing the life of the Forsyth family of Mintlaw, near… Read More

TV Interview Of Family Dealing With Cystinosis
(Posted: 20 July, 2009 )

Trevor Strauss’s 23-month-old daughter, Gabby, has Cystinosis and he is the founder of Canadian based charity CARE – Cystinosis Awareness… Read More

I Have Cystinosis, Cystinosis Does Not Have Me!
(Posted: 16 February, 2009 )

16th February 2009 Lauren Ellis, Manchester My name is Lauren and I was diagnosed with Cystinosis when I was 18… Read More

Teaching A Child With Cystinosis
(Posted: 3 February, 2009 )

Mrs Dale, Ridgeway School, Derby (www.ridgewayprimary.com) When I was first told that I was going to have a child with… Read More

Living With Cystinosis – Our Story So Far
(Posted: 22 August, 2005 )

In 2001 Vicky and Roy Forsyth’s 7-month-old daughter suddenly fell ill as they were moving house. What was initially thought… Read More