Cystinosis Foundation UK

A UK Registered Charity (Charity No.1074885)

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Personal Stories

16 February, 2009
I Have Cystinosis, Cystinosis Does Not Have Me!

3 February, 2009
Teaching A Child With Cystinosis

22 August, 2005
Living With Cystinosis – Our Story So Far

Diary Date

International Conference
September 2010

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Recent News

Fundraising Update – £190,793!
April 4th 2010 – 65 Mile Walk
Support Jo Grant’s Run

Research Appeal

Total: £190,793(Mar 2010)

Target: £200,000
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