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	<title>Cystinosis Foundation UK &#187; Personal Stories</title>
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		<title>TV Interview Of Family Dealing With Cystinosis</title>
		<link>http://www.cystinosis.org.uk/archives/1043</link>
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		<pubDate>Mon, 20 Jul 2009 19:38:43 +0000</pubDate>
		<dc:creator>Matt</dc:creator>
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		<description><![CDATA[Trevor Strauss&#8217;s 23-month-old daughter, Gabby, has Cystinosis and he is the founder of Canadian based charity CARE &#8211; Cystinosis Awareness Research. Trevor was recently interviewed for Canadian Rock 107&#8217;s Morning Show. You can view the full interview at Rock 107&#8217;s website.
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		<title>I Have Cystinosis, Cystinosis Does Not Have Me!</title>
		<link>http://www.cystinosis.org.uk/archives/83</link>
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		<pubDate>Mon, 16 Feb 2009 00:00:56 +0000</pubDate>
		<dc:creator>Matt</dc:creator>
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		<description><![CDATA[16th February 2009
 Lauren Ellis, Manchester 
 My name is Lauren and I was diagnosed with Cystinosis when I was 18 months old. I was always a very sickly baby but when my mum took me to the GP he always gave the same excuse: &#8220;she’s just a normal baby&#8221;. When I should have started [...]]]></description>
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		<title>Teaching A Child With Cystinosis</title>
		<link>http://www.cystinosis.org.uk/archives/390</link>
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		<pubDate>Tue, 03 Feb 2009 20:17:15 +0000</pubDate>
		<dc:creator>Philippa</dc:creator>
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Mrs Dale, Ridgeway School, Derby (www.ridgewayprimary.com)
When I was first told that I was going to have a child with Cystinosis in my class, I have to admit I was clueless. It was a condition I had never heard of and, although it sounded like something ‘medical’, I really had no idea what to expect. On [...]]]></description>
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		<title>Living With Cystinosis &#8211; Our Story So Far</title>
		<link>http://www.cystinosis.org.uk/archives/484</link>
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		<pubDate>Mon, 22 Aug 2005 22:05:17 +0000</pubDate>
		<dc:creator>Philippa</dc:creator>
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		<description><![CDATA[ In 2001 Vicky and Roy Forsyth&#8217;s 7-month-old daughter suddenly fell ill as they were moving house. What was initially thought to be a bug, persisted and was eventually diagnosed as Cystinosis, turning their world upside down. Vicky, Roy and their daughter have had to learn to deal with a punishing medicine regime and uncertainty [...]]]></description>
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