2010 International Conference Report
(Posted: 27 December, 2011 )
Orphan Europe were one of our sponsors at the Cystinosis UK conference held in Manchester in September this year for… Read More
Research & Conferences
Who Are Orphan Europe
(Posted: 27 December, 2011 )
(Posted: 27 December, 2011 )
UK Cystinosis Conference 2011
(Posted: 13 October, 2011 )
(Posted: 13 October, 2011 )
On 24th September 2011, over 100 people attended the UK Cystinosis conference at the Manchester Conference Centre- the first UK… Read More
UK Conference Programme Now Available
(Posted: 5 August, 2011 )
(Posted: 5 August, 2011 )
The Cystinosis Foundation UK conference programme is now available. The conference takes place on September 24th at the Manchester Conference… Read More
UK Conference Confirmation – September 24th
(Posted: 20 July, 2011 )
(Posted: 20 July, 2011 )
A huge number of you have registered your interest in the UK conference and there have been several requests to… Read More
CRN Conference – USA – 14th July 2011
(Posted: 23 March, 2011 )
(Posted: 23 March, 2011 )
The Cystinosis Research Network conference will take place between 14-16th July 2011 in San Francisco. The 3 day event will… Read More
Sunderland University Research Video
(Posted: 19 March, 2011 )
(Posted: 19 March, 2011 )
We are grateful to Sunderland University for allowing us to reproduce this video outlining research at the university, including their… Read More
International Cystinosis Conference 2010
(Posted: 6 November, 2010 )
(Posted: 6 November, 2010 )
The 6th International Cystinosis Conference took place between Thursday 23rd and Sunday 26th September 2010, at the Village Getur (a… Read More
Sunderland Research
(Posted: 6 October, 2010 )
(Posted: 6 October, 2010 )
Our thanks go to Roz Anderson and Lisa Frost at Sunderland University for allowing us to publish their research poster,… Read More
RGU Research – Alternative Cysteamine Delivery Systems – Eye Gels
(Posted: 4 October, 2010 )
(Posted: 4 October, 2010 )
Further to other recent publications, we would again like to thank Barbara Buchan and the Cystinosis Research Team at the… Read More
RGU Research – Alternative Cysteamine Delivery Systems
(Posted: 27 September, 2010 )
(Posted: 27 September, 2010 )
We are grateful to the Cystinosis Research Team at the Robert Gordon University Aberdeen, and in particular researcher, Barbara Buchan,… Read More
IMPORTANT – CONFERENCE SHUTTLE BUS TIME CHANGES
(Posted: 10 September, 2010 )
(Posted: 10 September, 2010 )
To all those going to the conference, please note the shuttle bus times have changed – please contact Quick Line… Read More
Foundation Assists Robert Gordon University Attend Conference
(Posted: 1 September, 2010 )
(Posted: 1 September, 2010 )
We are pleased to publish a conference report by Barbara Buchan of the Robert Gordon University in Aberdeen. Barbara, who… Read More
Visit To Robert Gordon University, Aberdeen
(Posted: 17 August, 2010 )
(Posted: 17 August, 2010 )
On June 9th Chairman, Roy Forsyth, his wife Vicky and Secretary, John Terry, visited the School of Pharmacy and Life… Read More
Gel Formulations For Treatment Of The Ophthalmic Complications In Cystinosis
(Posted: 5 May, 2010 )
(Posted: 5 May, 2010 )
We are very grateful to Dr Graeme Kay, Lecturer in Pharmaceutical Science at The Robert Gordon University, Aberdeen, for allowing… Read More
Twice-Daily Cysteamine Trials Update
(Posted: 30 March, 2010 )
(Posted: 30 March, 2010 )
The Cystinosis Research Foundation has made available the publication of "Long-Term Treatment of Cystinosis in Children with Twice-Daily Cysteamine" by… Read More
