2010 International Conference Report
(Posted: 24 February, 2012 )
We set ourselves the target of raising £300,000 to help support research for the improvement of cystinosis treatments. By November… Read More
Research & Conferences
Fundraising Update – Almost There
(Posted: 24 February, 2012 )
(Posted: 24 February, 2012 )
Prodrugs Research at University of Sunderland
(Posted: 10 February, 2012 )
(Posted: 10 February, 2012 )
Our thanks go to Professor Roz Anderson, at Sunderland University, for providing us with a recent update on her team’s… Read More
Who Are Orphan Europe
(Posted: 27 December, 2011 )
(Posted: 27 December, 2011 )
Orphan Europe were one of our sponsors at the Cystinosis UK conference held in Manchester in September this year for… Read More
UK Cystinosis Conference 2011
(Posted: 13 October, 2011 )
(Posted: 13 October, 2011 )
On 24th September 2011, over 100 people attended the UK Cystinosis conference at the Manchester Conference Centre- the first UK… Read More
UK Conference Programme Now Available
(Posted: 5 August, 2011 )
(Posted: 5 August, 2011 )
The Cystinosis Foundation UK conference programme is now available. The conference takes place on September 24th at the Manchester Conference… Read More
UK Conference Confirmation – September 24th
(Posted: 20 July, 2011 )
(Posted: 20 July, 2011 )
A huge number of you have registered your interest in the UK conference and there have been several requests to… Read More
CRN Conference – USA – 14th July 2011
(Posted: 23 March, 2011 )
(Posted: 23 March, 2011 )
The Cystinosis Research Network conference will take place between 14-16th July 2011 in San Francisco. The 3 day event will… Read More
Sunderland University Research Video
(Posted: 19 March, 2011 )
(Posted: 19 March, 2011 )
We are grateful to Sunderland University for allowing us to reproduce this video outlining research at the university, including their… Read More
International Cystinosis Conference 2010
(Posted: 6 November, 2010 )
(Posted: 6 November, 2010 )
The 6th International Cystinosis Conference took place between Thursday 23rd and Sunday 26th September 2010, at the Village Getur (a… Read More
Sunderland Research
(Posted: 6 October, 2010 )
(Posted: 6 October, 2010 )
Our thanks go to Roz Anderson and Lisa Frost at Sunderland University for allowing us to publish their research poster,… Read More
RGU Research – Alternative Cysteamine Delivery Systems – Eye Gels
(Posted: 4 October, 2010 )
(Posted: 4 October, 2010 )
Further to other recent publications, we would again like to thank Barbara Buchan and the Cystinosis Research Team at the… Read More
RGU Research – Alternative Cysteamine Delivery Systems
(Posted: 27 September, 2010 )
(Posted: 27 September, 2010 )
We are grateful to the Cystinosis Research Team at the Robert Gordon University Aberdeen, and in particular researcher, Barbara Buchan,… Read More
IMPORTANT – CONFERENCE SHUTTLE BUS TIME CHANGES
(Posted: 10 September, 2010 )
(Posted: 10 September, 2010 )
To all those going to the conference, please note the shuttle bus times have changed – please contact Quick Line… Read More
Foundation Assists Robert Gordon University Attend Conference
(Posted: 1 September, 2010 )
(Posted: 1 September, 2010 )
We are pleased to publish a conference report by Barbara Buchan of the Robert Gordon University in Aberdeen. Barbara, who… Read More
Visit To Robert Gordon University, Aberdeen
(Posted: 17 August, 2010 )
(Posted: 17 August, 2010 )
On June 9th Chairman, Roy Forsyth, his wife Vicky and Secretary, John Terry, visited the School of Pharmacy and Life… Read More
