Once A Month Session With Jonathan

The Foundation runs a "Once A Month Chat Line" to allow those affected by cystinosis to have a discussion with others in a similar situation. The call is chaired by Jonathan Terry, our charity’s founder and oldest known person in the UK with cystinosis.

These sessions will be run on an ad-hoc basis and advertised as they become available.

Please only call during the advertised periods.

Current Session Dates

To join the session