This website is not just the Foundation's website, it is also YOUR website.
This website is not just about promoting the Foundation's activities and needs, it is also about communicating YOUR activities and needs.
We need your help to keep this site current and reflecting what is happening with respect to Cystinosis in the UK. If you are (or know of) someone who is (or has) arranged an event for Cystinsosis, is working in the field of Cystinosis, or know of anything else that is of interest, please contact us.
In addition, we are also looking for contributions to the site — if you would like to write an article, please contact us with your idea. It can be talking about research, a special event, your medicine regime, or just generally about how you and your family cope with Cystinosis. By sharing experiences we can grow together.
We thank all those who have contributed to date for their time and effort in helping this site to be interesting and informative.