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	<title>Cystinosis Foundation UK</title>
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	<link>http://www.cystinosis.org.uk</link>
	<description>A UK Registered Charity (Charity No.1074885)</description>
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		<title>Raptor Slow Release Treatment At Trial Stage</title>
		<link>http://www.cystinosis.org.uk/archives/2126</link>
		<comments>http://www.cystinosis.org.uk/archives/2126#comments</comments>
		<pubDate>Fri, 03 Sep 2010 11:26:22 +0000</pubDate>
		<dc:creator>Matt</dc:creator>
				<category><![CDATA[News]]></category>

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		<description><![CDATA[US Pharmaceutical firm, Raptor, have successfully raised funds via a share issue to fund the next stage of trials for their new Cystinosis treatment.
DR Cysteamine is the first drug from Raptor, and it is hoped that its slow release mechanism will allow Cystinotics to take their medication only twice a day, rather than the current [...]]]></description>
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		<title>Foundation Assists Robert Gordon University Attend Conference</title>
		<link>http://www.cystinosis.org.uk/archives/2116</link>
		<comments>http://www.cystinosis.org.uk/archives/2116#comments</comments>
		<pubDate>Wed, 01 Sep 2010 08:25:51 +0000</pubDate>
		<dc:creator>Matt</dc:creator>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Research & Conferences]]></category>

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		<description><![CDATA[We are pleased to publish a conference report by Barbara Buchan of the Robert Gordon University in Aberdeen. Barbara, who is receiving funding by the Cystinosis Foundation UK, recently attended the Controlled Release Society’s 37th Annual Meeting and Exposition in Portland, Oregon, USA.
Over 1,400 people attended the conference, with over 100 exhibitors. This prestigious conference [...]]]></description>
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		<title>Suggers Joins The Marathon Team!</title>
		<link>http://www.cystinosis.org.uk/archives/2099</link>
		<comments>http://www.cystinosis.org.uk/archives/2099#comments</comments>
		<pubDate>Wed, 25 Aug 2010 13:23:42 +0000</pubDate>
		<dc:creator>Matt</dc:creator>
				<category><![CDATA[News]]></category>

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		<description><![CDATA[Cystinosis Foundation UK committee member Neil Sugden has taken up the challenge of the Amsterdam Half Marathon on October 17th 2010. Neil was asked by friend and fellow trustee David Benford to join him on the 13.1 mile run and help raise money for Cystinosis research.
&#8220;I have only ever ran for a train so this [...]]]></description>
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		<title>Shall We Meet Up In 2011?</title>
		<link>http://www.cystinosis.org.uk/archives/2094</link>
		<comments>http://www.cystinosis.org.uk/archives/2094#comments</comments>
		<pubDate>Sat, 21 Aug 2010 13:13:27 +0000</pubDate>
		<dc:creator>Matt</dc:creator>
				<category><![CDATA[News]]></category>

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		<description><![CDATA[There have been various discussions and notes of interest for a Cystinosis UK gathering in 2011. The Cystinosis Foundation UK is keen to facilitate and help organise a meeting for those of us affected by Cystinosis, to allow us all to share our knowledge and experiences.
Currently, we are unsure where and what form the conference [...]]]></description>
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		<title>Peterhead Harbour Open Day Success</title>
		<link>http://www.cystinosis.org.uk/archives/2069</link>
		<comments>http://www.cystinosis.org.uk/archives/2069#comments</comments>
		<pubDate>Wed, 18 Aug 2010 19:04:54 +0000</pubDate>
		<dc:creator>Matt</dc:creator>
				<category><![CDATA[News]]></category>

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		<description><![CDATA[A big thank you goes to Elizabeth Forsyth, grandmother to Cystinotic Lena Forsyth, who had yet another fantastic fundraising day at the Peterhead Harbour Open Day on the 14th of August. Elizabeth ran the stall the entire day with hardly a break, selling craft items such as knitting, bags, quizzes and home-made cards, as well [...]]]></description>
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