<?xml version="1.0" encoding="UTF-8"?>
<rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:wfw="http://wellformedweb.org/CommentAPI/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
	xmlns:slash="http://purl.org/rss/1.0/modules/slash/"
	>

<channel>
	<title>Cystinosis Foundation UK</title>
	<atom:link href="http://www.cystinosis.org.uk/feed" rel="self" type="application/rss+xml" />
	<link>http://www.cystinosis.org.uk</link>
	<description>A UK Registered Charity (Charity No.1074885)</description>
	<lastBuildDate>Tue, 09 Mar 2010 22:25:53 +0000</lastBuildDate>
	<generator>http://wordpress.org/?v=2.9</generator>
	<language>en</language>
	<sy:updatePeriod>hourly</sy:updatePeriod>
	<sy:updateFrequency>1</sy:updateFrequency>
			<item>
		<title>Fundraising Update &#8211; £190,793!</title>
		<link>http://www.cystinosis.org.uk/archives/878</link>
		<comments>http://www.cystinosis.org.uk/archives/878#comments</comments>
		<pubDate>Tue, 09 Mar 2010 22:25:53 +0000</pubDate>
		<dc:creator>Matt</dc:creator>
				<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.cystinosis.org.uk/?p=878</guid>
		<description><![CDATA[The Cystinosis Foundation UK is incredibly proud to announce that we have now raised over £190,000, as of March 2010, and are now less than £10,000 from our target. This money is being used to assist the funding of various research projects contributing towards better understanding and treatments for Cystinosis and we hope to bring [...]]]></description>
		<wfw:commentRss>http://www.cystinosis.org.uk/archives/878/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>April 4th 2010 &#8211; 65 Mile Walk</title>
		<link>http://www.cystinosis.org.uk/archives/856</link>
		<comments>http://www.cystinosis.org.uk/archives/856#comments</comments>
		<pubDate>Sun, 21 Feb 2010 20:27:06 +0000</pubDate>
		<dc:creator>Matt</dc:creator>
				<category><![CDATA[Events]]></category>

		<guid isPermaLink="false">http://www.cystinosis.org.uk/?p=856</guid>
		<description><![CDATA[On April 4th 2010, a group of walkers, led by Colin Buist will undertake a 65 mile walk along Speyside in North East Scotland. The group have been inspired to undertake the walk in aid of Mr Buist&#8217;s cousin, 9 year-old Cystinotic, Lena Forsyth, also from the North East. Anyone who wants to donate money [...]]]></description>
		<wfw:commentRss>http://www.cystinosis.org.uk/archives/856/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Support Jo Grant&#8217;s Run</title>
		<link>http://www.cystinosis.org.uk/archives/766</link>
		<comments>http://www.cystinosis.org.uk/archives/766#comments</comments>
		<pubDate>Thu, 11 Feb 2010 19:40:20 +0000</pubDate>
		<dc:creator>Matt</dc:creator>
				<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.cystinosis.org.uk/?p=766</guid>
		<description><![CDATA[
Jo Grant will be running in the Kingston Breakfast Run on 11th April 2010 to raise money for the Cystinosis Foundation UK.  Jo states, &#34;I only recently became aware of this charity as my friend&#8217;s god-daughter has Cystinosis&#34;, and it was this that has inspired her to don her running shoes and support the [...]]]></description>
		<wfw:commentRss>http://www.cystinosis.org.uk/archives/766/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>$75,000 raised in 24 hour ski marathon</title>
		<link>http://www.cystinosis.org.uk/archives/700</link>
		<comments>http://www.cystinosis.org.uk/archives/700#comments</comments>
		<pubDate>Mon, 01 Feb 2010 21:14:29 +0000</pubDate>
		<dc:creator>Matt</dc:creator>
				<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.cystinosis.org.uk/?p=700</guid>
		<description><![CDATA[An absolutely incredible $75,000 was raised at the ski resort of Schweitzer Mountain, Sandpoint, Idaho, USA in honour of cystinotic and Sandpoint resident, 3-year-old Henry Sturgis.
The resort stayed open through the night last Friday, as participants skied for the full 24 hours, with Matt Gillis completing an astonishing and record-breaking 196 non-stop laps.
You can read [...]]]></description>
		<wfw:commentRss>http://www.cystinosis.org.uk/archives/700/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Olly Murs At The River Bar &#8211; 7th Feb 2010</title>
		<link>http://www.cystinosis.org.uk/archives/627</link>
		<comments>http://www.cystinosis.org.uk/archives/627#comments</comments>
		<pubDate>Wed, 27 Jan 2010 20:56:29 +0000</pubDate>
		<dc:creator>Matt</dc:creator>
				<category><![CDATA[Events]]></category>

		<guid isPermaLink="false">http://www.cystinosis.org.uk/?p=627</guid>
		<description><![CDATA[We are very pleased to announce a concert in aid of the Cystinosis Foundation UK, featuring X-Factor star Olly Murs, in the luscious surroundings of the River Bar in Greenwich on 7th February 2010. This will be everybody’s last opportunity to grab these golden tickets as it will be his last performance before the live [...]]]></description>
		<wfw:commentRss>http://www.cystinosis.org.uk/archives/627/feed</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
	</channel>
</rss>
