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What Is Cystinosis?

Cystine is an amino acid of which Cystinotics possess too much. Cystinosis occurs when the mechanism, which removes excess cystine, breaks down.
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Help With Treatment?

There are 13 treatment centres in the UK that can deal with Cystinosis.
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Personal Stories

Sarah Laing on ITV television
Posted by Matt on 20 October, 2011

Morven’s Story In The News
Posted by Matt on 12 September, 2011

Serena Celebrates 21st Anniversary Of Transplant
Posted by Matt on 14 April, 2011

The Forsyth Story On Television
Posted by Matt on 4 September, 2009

TV Interview Of Family Dealing With Cystinosis
Posted by Matt on 20 July, 2009


Research & Conferences

Who Are Orphan Europe
Posted by Matt on 27 December, 2011

UK Cystinosis Conference 2011
Posted by Matt on 13 October, 2011

UK Conference Programme Now Available
Posted by Matt on 5 August, 2011

UK Conference Confirmation – September 24th
Posted by Matt on 20 July, 2011

CRN Conference – USA – 14th July 2011
Posted by Matt on 23 March, 2011