Other Sources Of Support
One of our primary aims is to help sufferers and families to cope with Cystinosis in their daily
lives. And whilst we try to offer many forms of assistance, we are broad in our approach.
Several other Cystinosis organisations exist within the UK specialising in specific needs.
In particular, the Cystinosis Family Support Network is concerned primarily with helping families and their children lead normal lives and arranges events for children. We can recommend this organisation to you if you are looking to help your child take part in exciting activities, or have a specific need for your child.
