Website Privacy Policy
The Cystinosis Foundation UK is committed to safeguarding your privacy online. Please read the following
policy to understand how your personal information will be treated:
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What Information does the Cystinosis Foundation UK collect and how is it used?
The Cystinosis Foundation UK collects information regarding what pages are accessed and when to enable
us to understand how our website is used (e.g. what content is popular). It is not possible to directly
identify individuals from this information. Nor does this site make use of cookies.
We may also collect information volunteered by you via our contact form and will use this information
only in the context of contacting you regarding your query and the Cystinosis Foundation UK.
Should you choose to use our on-line donation facility, your information is only used in the context
of this transaction and to reclaim Gift Aid, should this be applicable. Your financial details
(such as credit card numbers) are not held by the Cystinosis Foundation UK and are processed only by
PayPal, who provide our on-line donation facilities. Please see PayPal (www.paypal.co.uk) for a list of
their terms and conditions.
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With whom does the Cystinosis Foundation UK share my information?
The Cystinosis Foundation UK does not share your information with any third parties without your
permission. The only exception is through use of our on-line donation facilities where your information
is passed to PayPal to enable them to process your donation. Please see PayPal
(www.paypal.co.uk) for a list of their terms
and conditions.
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How do I update, correct or delete my personally identifiable information?
Please contact us via the website contact form to update, correct or delete your information, or write
to us at the address advertised on this website.
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What security precautions are in place to protect the loss or misuse or alteration of my information?
Unfortunately, no data transmitted over the Internet is guaranteed to be 100% secure. Therefore, the
Cystinosis Foundation UK does not warrant the security of any information you may transmit and you do
so at your own risk. Once we receive a transmission we do our best to ensure it is not lost, misused
or altered.
The on-line donation facility is provided by PayPal, who offer the service over a secured, encrypted
protocol. Please see PayPal (www.paypal.co.uk)
for their security precautions.
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Users under 18.
If you are under 18 and using this website or supporting the Cystinosis Foundation UK in any form,
please let an adult know.
Data Protection
UK law requires the Cystinosis Foundation UK to be registered with the Information Commissioner's Office, that
the data we hold on individuals and our use of this data is both legal and responsible, and that those who have
access to it are vetted accordingly.
We are registered with the Information Commissioner's Office, registration number Z9880997, and take our
responsibility seriously. For more information
see
The Information Commisioner's website.