WE ARE COMMITTED TO PROVIDING UP TO DATE INFORMATION FOR PATIENTS AND SUPPORTERS

Learn More

What Is Cystinosis?

Cystine is an amino acid of which Cystinotics possess too much. Cystinosis occurs when the mechanism, which removes excess cystine, breaks down.
Find out more…

Help With Treatment?

There are 13 treatment centres in the UK that can deal with Cystinosis.
Find out more…

Comments are closed.

What is Cystinosis

Treatment Centres

Personal Stories

Cystinosis Worldwide

Helpful Links

Conferences

News

March 20, 2023

Contact: For Families With Disabled Children We’ve recently discovered this organisation that offers a wealth of information, advice [...] Read more...

Events

November 20, 2021

Latest News and Updates Webinar – 27th November 2021 Please join us on Saturday, 27th November at 2pm for our ‘Latest News and Updates’ [...] Read more...

Stories

September 13, 2017

Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...

Newsletters

January 22, 2023

Winter 2022 Newsletter The Winter 2022 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...

All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.

site:bonnyday