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What Is Cystinosis?

Cystine is an amino acid of which Cystinotics possess too much. Cystinosis occurs when the mechanism, which removes excess cystine, breaks down.
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Help With Treatment?

There are 13 treatment centres in the UK that can deal with Cystinosis.
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What is Cystinosis

Treatment Centres

Personal Stories

Cystinosis Worldwide

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Conferences

News

November 17, 2024

CNE International Conference 2024 – We did it! Cystinosis Network Europe and Cystinosis Foundation UK were delighted to host the 2024 [...] Read more...

Events

November 17, 2024

Watch back elements of our CNE International Conference 2024 – Better Together. Our joint International Conference with CNE, held in Manchester in July 2024, was packed full [...] Read more...

Stories

September 13, 2017

Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...

Newsletters

July 26, 2024

Summer 2024 Newsletter The Summer 2024 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...

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