Conferences

Sunderland University Research Video 19 March , 2011

We are grateful to Sunderland University for allowing us to reproduce this video outlining research at the university, including their work sponsored by the Cystinosis Foundation UK. The 4 minute film reviews research at Sunderland University, with significant coverage of the research into cystinosis treatments being undertaken there. The video includes an interview with Roy […]

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International Cystinosis Conference 2010 6 November , 2010

The 6th International Cystinosis Conference took place between Thursday 23rd and Sunday 26th September 2010, at the Village Getur (a dedicated Olympic standard training facility and conference centre) in Lignano, near Venice, Italy. Around 200 delegates attended, including researchers, medical practitioners, those with Cystinosis, their families, friends and many others. The conference occurs every two […]

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Sunderland Research 6 October , 2010

Our thanks go to Roz Anderson and Lisa Frost at Sunderland University for allowing us to publish their research poster, which was recently presented at the International Cystinosis Conference in Lignano, near Venice, in Italy. The team at Sunderland University are, with financial support from the Cystinosis Foundation UK, researching prodrugs that would avoid some […]

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RGU Research – Alternative Cysteamine Delivery Systems – Eye Gels 4 October , 2010

Further to other recent publications, we would again like to thank Barbara Buchan and the Cystinosis Research Team at the Robert Gordon University Aberdeen, for allowing us to publish their poster presentation reviewing their research into eye gels. This poster was displayed at the International Cystinosis Conference in Lignano (near Venice) in September this year. […]

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RGU Research – Alternative Cysteamine Delivery Systems 27 September , 2010

We are grateful to the Cystinosis Research Team at the Robert Gordon University Aberdeen, and in particular researcher, Barbara Buchan, for allowing us to publish their research poster presentation. The poster was presented at the APS Conference in Nottingham. CystagonTM, the primary medicine for treating Cystinosis, must be administered every 6 hours and the team […]

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IMPORTANT – CONFERENCE SHUTTLE BUS TIME CHANGES 10 September , 2010

To all those going to the conference, please note the shuttle bus times have changed – please contact Quick Line to confirm the time of your shuttle bus. If you are unfamiliar with Venice Aiport, a map and virtual tour can be found here: Venice Aiport. I am told the airport is quite small, so […]

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Foundation Assists Robert Gordon University Attend Conference 1 September , 2010

We are pleased to publish a conference report by Barbara Buchan of the Robert Gordon University in Aberdeen. Barbara, who is receiving funding by the Cystinosis Foundation UK, recently attended the Controlled Release Society’s 37th Annual Meeting and Exposition in Portland, Oregon, USA. Over 1,400 people attended the conference, with over 100 exhibitors. This prestigious […]

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Visit To Robert Gordon University, Aberdeen 17 August , 2010

On June 9th Chairman, Roy Forsyth, his wife Vicky and Secretary, John Terry, visited the School of Pharmacy and Life Sciences at the Robert Gordon University (RGU). Our host was Professor Don Cairns who moved to RGU from Sunderland about 7 years ago. During that time Don has built up a strong group of scientists […]

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Gel Formulations For Treatment Of The Ophthalmic Complications In Cystinosis 5 May , 2010

We are very grateful to Dr Graeme Kay, Lecturer in Pharmaceutical Science at The Robert Gordon University, Aberdeen, for allowing us to publish this research article into ‘Gel Formulations For Treatment Of The Ophthalmic Complications In Cystinosis’. Read Full Article.

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Twice-Daily Cysteamine Trials Update 30 March , 2010

The Cystinosis Research Foundation has made available the publication of "Long-Term Treatment of Cystinosis in Children with Twice-Daily Cysteamine" by a group of leading researchers, including Dr Ranjan Dohil. This publication details the results of a long term study of enteric coated Cystagon capsules with a group of cystinotics. The enteric coating is designed to […]

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We’re Looking for New Trustees – Can You Help? Cystinosis Foundation UK is a charity that helps and supports people living with the rare [...] Read more...
National Cystinosis Study Day at QE Hospital, Birmingham The QE Hospital in Birmingham are hosting a ‘National Cystinosis Study Day’ on Saturday, 26th [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
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