Conferences

UK Cystinosis Conference 2011 13 October , 2011

On 24th September 2011, over 100 people attended the UK Cystinosis conference at the Manchester Conference Centre– the first UK conference for several years and certainly the largest. Attendees included individuals from the Foundation itself, researchers, medical practitioners, those with Cystinosis, their families, friends and many others. We were also very pleased to welcome our […]

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UK Conference Programme Now Available 5 August , 2011

The Cystinosis Foundation UK conference programme is now available. The conference takes place on September 24th at the Manchester Conference Centre and is due to start at 10.00 and expected to last until 17.00. View the programme. Details On The Manchester Conference Centre Please note that there are a few spaces left. So please CONTACT […]

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UK Conference Confirmation – September 24th 20 July , 2011

A huge number of you have registered your interest in the UK conference and there have been several requests to confirm whether the conference is taking place – the answer is simply “yes” and we look forward to seeing you there! Registrations are now formally closed, but we may be able to accommodate a few […]

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CRN Conference – USA – 14th July 2011 23 March , 2011

The Cystinosis Research Network conference will take place between 14-16th July 2011 in San Francisco. The 3 day event will include sessions with researchers and medical professionals from the field of Cystinosis, as well as a poster presentation and a motivational lecture by Cindy Abbott who last year summited Mount Everest, despite being diagnosed with […]

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Sunderland University Research Video 19 March , 2011

We are grateful to Sunderland University for allowing us to reproduce this video outlining research at the university, including their work sponsored by the Cystinosis Foundation UK. The 4 minute film reviews research at Sunderland University, with significant coverage of the research into cystinosis treatments being undertaken there. The video includes an interview with Roy […]

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International Cystinosis Conference 2010 6 November , 2010

The 6th International Cystinosis Conference took place between Thursday 23rd and Sunday 26th September 2010, at the Village Getur (a dedicated Olympic standard training facility and conference centre) in Lignano, near Venice, Italy. Around 200 delegates attended, including researchers, medical practitioners, those with Cystinosis, their families, friends and many others. The conference occurs every two […]

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Sunderland Research 6 October , 2010

Our thanks go to Roz Anderson and Lisa Frost at Sunderland University for allowing us to publish their research poster, which was recently presented at the International Cystinosis Conference in Lignano, near Venice, in Italy. The team at Sunderland University are, with financial support from the Cystinosis Foundation UK, researching prodrugs that would avoid some […]

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RGU Research – Alternative Cysteamine Delivery Systems – Eye Gels 4 October , 2010

Further to other recent publications, we would again like to thank Barbara Buchan and the Cystinosis Research Team at the Robert Gordon University Aberdeen, for allowing us to publish their poster presentation reviewing their research into eye gels. This poster was displayed at the International Cystinosis Conference in Lignano (near Venice) in September this year. […]

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RGU Research – Alternative Cysteamine Delivery Systems 27 September , 2010

We are grateful to the Cystinosis Research Team at the Robert Gordon University Aberdeen, and in particular researcher, Barbara Buchan, for allowing us to publish their research poster presentation. The poster was presented at the APS Conference in Nottingham. CystagonTM, the primary medicine for treating Cystinosis, must be administered every 6 hours and the team […]

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IMPORTANT – CONFERENCE SHUTTLE BUS TIME CHANGES 10 September , 2010

To all those going to the conference, please note the shuttle bus times have changed – please contact Quick Line to confirm the time of your shuttle bus. If you are unfamiliar with Venice Aiport, a map and virtual tour can be found here: Venice Aiport. I am told the airport is quite small, so […]

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Team of Five to Take on Tough Mudder Challenge This Sunday, 5th September a team of 5 fundraisers is taking on the ‘Tough Mudder‘, [...] Read more...
‘Cystinosis Connect’ Virtual Meet-up – 25th September 2021 Please join us for our next online meet-up. Your chance to virtually meet other patients and [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Please Subscribe to Our New Mailing List We are very excited to launch our new mailing list! By signing up for free at the link below [...] Read more...
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