SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

£81,083 Raised!

Great news! We have now broken through the £80,000 mark in our attempt to raise £100,000 to fund Cystinosis research projects!

Numerous fundraising events have taken place helping us to this total and we are grateful, as ever, to all those who freely contribute their time and talents. In the last few months we have had sponsored walks, a sponsored cycle, dances and even sales of home baking. All have contributed towards our target.
And it’s fantastic to know that others are organising yet more fundraising events. We have Paul Clifford attempting to cycle over 800km through Spain, further cake sales, as well as word search and wristband sales amongst other activities.

If you are organising a fundraiser, or know of someone else who is, please contact us – it is an encouragment to us all to know how people are helping.

Also, please note that we are now able to offer fundraising packs to help you with your event, which include items such as a sponsor form template, check lists, etc.

We are still looking to raise a further £19,000 which will allow us to secure funding for further research into Cystinosis and its treatment. Therefore, we urge you to become involved where possible. All help is appreciated, big or small, and every penny takes us a step closer.

Comments are closed.

CNE International Conference 2024 – We did it! Cystinosis Network Europe and Cystinosis Foundation UK were delighted to host the 2024 [...] Read more...
Watch back elements of our CNE International Conference 2024 – Better Together. Our joint International Conference with CNE, held in Manchester in July 2024, was packed full [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Summer 2024 Newsletter The Summer 2024 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday