A Child’s Napkin Inspires a Charity

When Natalie Stack’s parents asked her to make a wish, she didn’t want to wish for anything. But she wrote on a napkin that she wanted "to have my disease go away forever". Her cry for help spurred her parents into action, raising money to fund research to help cure Cystinosis and establish the Cystinosis Research Foundation.

This rather inspiring article can be found at: fortwayne.com

The Cystinosis Research Foundation’s website can be found at: www.natalieswish.com

Comments are closed.

Procysbi Available in Wales Following a decision by the ‘All Wales Therapeutics and Toxicology Centre’ Procysbi [...] Read more...
Latest News and Updates Webinar – 27th November 2021 Please join us on Saturday, 27th November at 2pm for our ‘Latest News and Updates’ [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Please Subscribe to Our New Mailing List We are very excited to launch our new mailing list! By signing up for free at the link below [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday