A Short Cut To Success

On 30th January, a sponsored hair-cut will be held for the Cystinosis Foundation UK. Charity trustee, David Benford, picks up the story:

Darcy's Sponsored Hair CutOn 30th January Mrs Sue Smith, a teaching assistant at St Andrew’s Primary School in Clifton Campvile, Staffordshire, will be having her hair cut by 10-year-old Darcy Benford to raise much-needed funds for the Cystinosis Foundation UK. This will take place in front of the whole school and as a safety precaution Darcy will be supervised by a real hairdresser!

So far they have raised over £500 and are aiming to raise even more. Darcy, who was diagnosed with cystinosis at 10 months old, is really excited about the event and is pondering on which style would suit Mrs Smith the most! Photographs will be posted on the Foundation’s website after the event.

To sponsor Sue please go to: www.justgiving.com/Susan-Smithcrazylady.

Good luck Sue & Darcy!!

Comments are closed.

Cystadrops Now Available for Patients in England Following advice from the Clinical Priorities Advisory Group (CPAG), NHS England has agreed to [...] Read more...
‘Cystinosis Connect’ Virtual Meet-up – 25th April 2021 Please join us for our next online meet-up. Your chance to virtually meet other patients and [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.