SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Aberdeenshire Family Raise £34,244

Jan 18th 2005


Five months ago, in response to the Cystinosis Foundation UK’s campaign to raise £100,000 to fund research projects, Vicky and Roy Forsyth set out to raise £300 – since then they have raised £34,244!!

The couple’s four-year-old daughter Lena suffers from Cystinosis. Lena is only one of 12 reported cases in Scotland and is one of three youngsters who attend the Royal Aberdeen Children’s Hospital.

Vicky and Roy, from Mintlaw, north of Aberdeen, are members of the Cystinosis Foundation UK and decided to try and help the charity’s appeal to raise £100,000 to fund research projects. They initially started by sending 300 letters to friends, family and local firms, hoping to raise £300. However, it generated over £12,000!

Since then, they have gone on to raise over £34,000 through various activities organised by themselves, friends, family, local businesses and others who have heard about the cause.Events such as coffee mornings, pub quizzes, sponsored runs and car boot sales have all added up. Over £11,000 was raised alone by a local 36 mile sponsored cycle ride, in which Roy himself participated.

“We would like to say a big thank-you to everyone who has helped raise money either by being involved in an event or sponsoring someone else to take part. There have been so many people, groups and organisations involved in this fundraising campaign that we would just like to thank them all for contributing and helping to raise this fantastic amount for Cystinosis Foundation UK,” Roy Forsyth.

The full story can be found at The Buchan Observer.

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