SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Aberdeenshire Family Raise £34,244

Jan 18th 2005


Five months ago, in response to the Cystinosis Foundation UK’s campaign to raise £100,000 to fund research projects, Vicky and Roy Forsyth set out to raise £300 – since then they have raised £34,244!!

The couple’s four-year-old daughter Lena suffers from Cystinosis. Lena is only one of 12 reported cases in Scotland and is one of three youngsters who attend the Royal Aberdeen Children’s Hospital.

Vicky and Roy, from Mintlaw, north of Aberdeen, are members of the Cystinosis Foundation UK and decided to try and help the charity’s appeal to raise £100,000 to fund research projects. They initially started by sending 300 letters to friends, family and local firms, hoping to raise £300. However, it generated over £12,000!

Since then, they have gone on to raise over £34,000 through various activities organised by themselves, friends, family, local businesses and others who have heard about the cause.Events such as coffee mornings, pub quizzes, sponsored runs and car boot sales have all added up. Over £11,000 was raised alone by a local 36 mile sponsored cycle ride, in which Roy himself participated.

“We would like to say a big thank-you to everyone who has helped raise money either by being involved in an event or sponsoring someone else to take part. There have been so many people, groups and organisations involved in this fundraising campaign that we would just like to thank them all for contributing and helping to raise this fantastic amount for Cystinosis Foundation UK,” Roy Forsyth.

The full story can be found at The Buchan Observer.

Comments are closed.

Novartis Gene Therapy Update We have received this message from Novartis regarding their gene therapy program for [...] Read more...
CNE International Conference 2024 Cystinosis Network Europe and Cystinosis Foundation UK are delighted to announce the 2024 [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Summer 2023 Newsletter The Summer 2023 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday