SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Contact: For Families With Disabled Children

We’ve recently discovered this organisation that offers a wealth of information, advice and support, for example on subjects such as: Benefits and tax credits; Early years support; Social care; Education and learning.

They run a freeĀ advice and informationĀ helpline parents and carers with a disabled child aged from birth to 25, living in any part of the UK.

Find out more about the help they can offer at https://contact.org.uk/help-for-families/information-advice-services/.

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