SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Cycle In Memory Of Acacia

Acacia Dawn Robinson was only 4 months old when, tragically, severe heart complications ended her life prematurely. As a mark of gratitude for the support the family received, Acacia’s grandparents, Michael and Julia Robinson, decided to raise funds for Australian charity HeartKids by cycling 173 miles around South East England. The lives of the family had also recently been touched by two children with Cystinosis, so the Cystinosis Foundation UK also received a donation of £700 from Michael and Julia’s cycle.

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We would like to take this opportunity to thank Michael and Julia for supporting the Foundation, whilst offering our deepest sympathies to the family for their loss of Acacia.

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