SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Cystinosis Family Support Network

Some of you may have noticed that the website www.cfsn.co.uk is no longer available. We are sad to report that the Cystinosis Family Support Network has indeed ceased to exist.

The Cystinosis Family Support Network focused on supporting to families in their day-to-day lives, providing a valuable service. However, we understand they are unfortunately no longer in a position to continue these services.

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