SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Fundraising Update

We are pleased to announce that our fundraising total now stands at a magnificant £133,053.63. This total has been raised by the hard work of many individuals giving up their time and talents to help us make a difference. This includes marathon running, multi-half-marathon running, birthday parties and donations made either via the website, or sent directly to the Foundation.

Special mentions must go to Bob Rumney and Vicky Forsyth – Bob Rumney’s annual golf day raised £5,300 for the Cystinosis Foundation UK this year, whilst Vicky Forsyth, a stalwart fundraiser for the Foundation, raised over £400 from a word quiz.

All monies raised for the Foundation go directly to funding research projects to help improve medicines and understanding of Cystinosis. And we thank everyone for helping us make a difference!!

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