News in America

Linked are two articles from American newspapers that highlight the story of families who have recently had children diagnosed with Cystinosis.

The first linked article covers the story of six-year-old Victor Gardner and includes a video clip of Victor. Unfortunately you will probably need broadband to be able to view the video properly:

The second linked article concerns the Partington family who have recently discovered both their children have Cystinosis. Despite this huge shock in their lives, the family have begun fundraising and raised over $200,000!!!:

Comments are closed.

Wendy Walks Again for Cystinosis Last year Wendy Exelby, whose son Adam has cystinosis, raised £400 for us by doing a sponsored [...] Read more...
POSTPONED: National Cystinosis Study Day at QE Hospital, Birmingham UPDATE: Unfortunately this event has been postponed until Spring 2018. When a new date is [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday