Newsletters

Issue 14 (April 2008) of our newsletter has recently been released and all members should now have their copy. The newsletter includes information about the international conference in Dublin during June of this year. To download a copy please click here.

We are pleased to announce that our latest newsletter has just been released and can be downloaded here. The newsletter is free to our members and details recent activities regarding the Cystinosis Foundation UK, Cystinosis and related news. If you have any queries regarding the newsletter, or the Foundation in general, please contact us.

The latest newsletter was recently sent out to the Foundation’s members but can also be downloaded here.

The latest newsletter was recently sent out to the Foundation’s members and can be downloaded here.

The latest newsletter was recently sent out to the Foundation’s members and can be downloaded here.

The latest newsletter was recently sent out to the Foundation’s members and can be downloaded here.

Jonathan Terry Awarded MBE We are incredibly pleased to report that our founder, Jonathan Terry, has been awarded an MBE [...] Read more...
National Cystinosis Study Day at The Priory Rooms, Birmingham NEW VENUE: The event will now be held at The Priory Rooms in Birmingham City Centre. The QE [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
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