Newsletters

Issue 15 (September 2008) of our newsletter has recently been released and all members should now have their copy. Thank you to everyone who has contributed to its content! If you have not received your newsletter, or would like to become a member and receive one, please contact us or you can choose to download […]

Issue 14 (April 2008) of our newsletter has recently been released and all members should now have their copy. The newsletter includes information about the international conference in Dublin during June of this year. To download a copy please click here.

We are pleased to announce that our latest newsletter has just been released and can be downloaded here. The newsletter is free to our members and details recent activities regarding the Cystinosis Foundation UK, Cystinosis and related news. If you have any queries regarding the newsletter, or the Foundation in general, please contact us.

The latest newsletter was recently sent out to the Foundation’s members but can also be downloaded here.

The latest newsletter was recently sent out to the Foundation’s members and can be downloaded here.

The latest newsletter was recently sent out to the Foundation’s members and can be downloaded here.

The latest newsletter was recently sent out to the Foundation’s members and can be downloaded here.

Team of Five to Take on Tough Mudder Challenge This Sunday, 5th September a team of 5 fundraisers is taking on the ‘Tough Mudder‘, [...] Read more...
‘Cystinosis Connect’ Virtual Meet-up – 25th September 2021 Please join us for our next online meet-up. Your chance to virtually meet other patients and [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Please Subscribe to Our New Mailing List We are very excited to launch our new mailing list! By signing up for free at the link below [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday