Cystinosis Fundraising Evening!
7.00pm Friday 6th June 2008
St Andrews School, Main St, Clifton Campville,
Nr Tamworth, B79 0AP
Contact: David or Claire Benford
Darcy Benford is a Cystinosis sufferer, just one of approximately two thousand people in the world to have it. As Cystinosis is so rare, research is desperately under-funded and the Benford family are trying to raise funds to help improve medication, thus improving quality of life for patients, and ultimately to find a cure.
To help raise funds, the Benfords are holding a "Pampered Chef" evening. Admission is £2.00 per adult which includes light refreshments. There will be a cookery demonstration by Cathy Thacker, the local Pampered Chef agent, including opportunities to try the food and purchase the cookery equipment. All the host’s commission is being donated to the Cystinosis Foundation UK.