SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

UK Conference Confirmation – September 24th

A huge number of you have registered your interest in the UK conference and there have been several requests to confirm whether the conference is taking place – the answer is simply “yes” and we look forward to seeing you there!

Registrations are now formally closed, but we may be able to accommodate a few more attendees. Please CONTACT US if you are haven’t yet registered and are keen to come.

The conference is for one day on Saturday 24th September at the Manchester Conference Centre and details can be found on our Conference Flyer.

The conference is being funded by the Foundation, so is free to attend. It is open to all those who are touched by Cystinosis – whether you have Cystinosis, have a family member or friend with Cystinosis, are a researcher, medical professional or in some way connected with the condition.

The conference is due to start at 1000 and expected to last until 1700 and the full programme is now available – View the programme

It is hoped that many will consider staying after the conference for some social time together. Accommodation can be arranged at the Manchester Conference Centre, or one of the many other hotels nearby. Accommodation is your responsibility to arrange, although we will try to advise where possible.

Look forward to seeing you!

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