Want To Talk About Cystinosis?

Jonathan TerryThe Foundation is trialing a "Once A Month Chat Line" to allow those affected by cystinosis to have a discussion with Jonathan Terry (charity founder and oldest known person in the UK with cystinosis).

These sessions will be run on an ad-hoc basis and advertised as they become available.

The first will be on Tuesday 7th Feb 2012 – the line is open 18:30-19:30.

To join the session call 0800 707 6903 (Free from most land-lines. Your mobile operator may charge for this call). The pass code is "32029437" then press "#".

Please only call during the advertised periods.

Comments are closed.

Wendy Walks Again for Cystinosis Last year Wendy Exelby, whose son Adam has cystinosis, raised £400 for us by doing a sponsored [...] Read more...
National Cystinosis Study Day at QE Hospital, Birmingham The QE Hospital in Birmingham are hosting a ‘National Cystinosis Study Day’ on [...] Read more...
Derby Moor Student an Inspiration to Us All Derby Moor student Eeshar Seehra was thrilled to achieve 3 A Levels in Maths, Physics and [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday