The Foundation is trialing a "Once A Month Chat Line" to allow those affected by cystinosis to have a discussion with Jonathan Terry (charity founder and oldest known person in the UK with cystinosis).
These sessions will be run on an ad-hoc basis and advertised as they become available.
The first will be on Tuesday 7th Feb 2012 – the line is open 18:30-19:30.
To join the session call 0800 707 6903 (Free from most land-lines. Your mobile operator may charge for this call). The pass code is "32029437" then press "#".
Please only call during the advertised periods.