SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

We’re Looking for New Trustees – Can You Help?

Cystinosis Foundation UK is a charity that helps and supports people living with the rare orphan condition cystinosis. We are looking for new trustees to bring their professional skills and expertise to the organisation so that we can continue to improve the medical research and patient support activities we have been doing for nearly 20 years. Although it would be helpful it doesn’t really matter if you have any direct links to cystinosis, because we can bring you upto speed. If you have a few hours each month to help people with this rare and currently incurable condition please get in touch.

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