For a brighter future...
ESTABLISHED IN 1998, WE ACHIEVED OFFICIAL UK CHARITY STATUS IN 1999

Charity Status

  • The Cystinosis Foundation UK is a UK registered charity — Charity No.1074885. For more information see: UK Registered Charities.
  • The Cystinosis Foundation UK now has a board of six trustees and in April 1999 achieved charity status. The Board of Trustees will always be made up of a minimum of three people who will meet on a regular basis.
  • The charity is self-funded through donations and also funds Cystinosis research projects at various academic institutes.

Please get in touch with us if you are interested in being a trustee.

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Events
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Watch back elements of our CNE International Conference 2024 – Better Together. Our joint International Conference with CNE, held in Manchester in July 2024, was packed full [...] Read more...
Stories
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Newsletters
March 24, 2025
Spring 2025 Newsletter The Spring 2025 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
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