For a brighter future...
ESTABLISHED IN 1998, WE ACHIEVED OFFICIAL UK CHARITY STATUS IN 1999

Charity Status

  • The Cystinosis Foundation UK is a UK registered charity — Charity No.1074885. For more information see: UK Registered Charities.
  • The Cystinosis Foundation UK now has a board of six trustees and in April 1999 achieved charity status. The Board of Trustees will always be made up of a minimum of three people who will meet on a regular basis.
  • The charity is self-funded through donations and also funds Cystinosis research projects at various academic institutes.

Please get in touch with us if you are interested in being a trustee.

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Events
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CNE International Conference 2024 Cystinosis Network Europe and Cystinosis Foundation UK are delighted to announce the 2024 [...] Read more...
Stories
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Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletters
July 26, 2024
Summer 2024 Newsletter The Summer 2024 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
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