STAFF OF VOLUNTEER TRUSTEES ALLOWS US TO DIRECT HARD-EARNED FUNDS TO THE RIGHT PLACES

Research Appeal

How We Use The Funds Raised

The Cystinosis Foundation UK has low overheads and is staffed solely by volunteers who work around full time jobs, families and other commitments. Hence we can channel as much of our funds as possible towards research and supporting those with Cystinosis.

Supporting Research

Research takes money and in 2004 we launched our campaign to raise £100,000 to enable us to fund several projects. In December 2006 we reached that target thanks to the many people who became involved in organising various fundraising events. This enabled us to commit to funding projects at Sunderland University and The Robert Gordon University (Aberdeen), as well as the Adult Cohort Study at Great Ormond Street Hospital, London. In March 2012 we reached a milestone of £300,000, enabling us to continue that financial support.

Why We Need Your Help

In order to continue funding these projects and support others, we took the decision to set a revised target of £500,000. We can only commit to a project once we have actually raised all monies required to fully fund it and before research staff can be hired, equipment bought, etc.

Since 2004 we have raised over £450,000. A great achievement, but we still have a way to go. By making a donation or organising a fundraising event you can help us reach our goal. It is only through our supporters that we can hope to achieve our aims, and we hope you can see we are starting to make a difference.

Through the website and newsletters we will keep you informed of how research is progressing and how your efforts are making a difference.

How you can help us…

Comments are closed.

Contact: For Families With Disabled Children We’ve recently discovered this organisation that offers a wealth of information, advice [...] Read more...
Latest News and Updates Webinar – 27th November 2021 Please join us on Saturday, 27th November at 2pm for our ‘Latest News and Updates’ [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Winter 2022 Newsletter The Winter 2022 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday