How To Help

The Cystinosis Foundation UK is wholly funded through donations from individuals, companies and fundraising activities by the charity and those who support us. You can read more detail about our activities in our aims. You can support us in numerous ways, with just a few listed below.

No matter how big or small your contribution, whether it be time or finanicial, we truly appreciate all offers of assistance.

Join Us

After joining the Cystinosis Foundation UK you will be sent our periodic newsletter. In addition, we will keep you informed of news and events, as and when they occur. Find out more…

Donate Now

You can easily donate in a variety of ways:

Remember to complete a Gift Aid Declaration if you pay tax in the UK.

Raise More Through Gift Aid

If you are a UK tax payer, by completing our Gift Aid Declaration, we can claim tax back from the Government making your donation worth about 25% more, at no cost to yourself! And higher rate tax payers can claim tax relief on any donations too on their tax return.

Fundraise For Us

Take part in a local charity event, or even organise your own! Find out more…

Use Our On-Line Store

Remember to use our on-line site for all your shopping. It includes all the big retailers from Amazon to Asda – all you need to do is first go to and select the link to your retailer and they will donate money to us when you complete your purchase – at no cost to you.

Jonathan Terry Has Sadly Passed Away We are very sad to report that our founder, Jonathan Terry, died peacefully in his sleep on 9th [...] Read more...
10th March 2019 – Movie Music Magic Concert On 10th March 2019 the Cinematic Syncopations Orchestra are hosting an afternoon of music from [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
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