Fundraising Ideas

The Foundation has been fortunate to have many individuals support our cause. Below is a short list of events to help you think of how you could organise your own:

  • Creating and selling word searches.
  • Holding a local raffle.
  • Pub quiz.
  • A coffee morning with friends.
  • Sponsored sports event (run, cycle, sky diving!?).


Get Our Fundraising Pack

The Cystinosis Foundation UK will help you in any way that we can to raise money. In order to help get you started we have created our “fundraising pack” – this pack contains background information on Cystinosis, sponsor forms, check lists and advise on organising an event. It is available in electronic and paper versions.
Please contact us should you wish to order a paper version. The packs are free – all we ask is that you are genuinely interested in raising money before requesting one, as we do cover the production costs.


Help make your event stand out. We have a limited supply of tabards that we can lend to fundraisers for the duration of their event. Useful for running, other sporting activities, or just to help raise your profile whilst undertaking your event. If you require a tabard, please contact us. They come in one size that fits all.

Please note: we only have a limited supply, so we can only provide to committed fundraisers. In addition, we can only provide them for free if they are returned after use.

Contact: For Families With Disabled Children We’ve recently discovered this organisation that offers a wealth of information, advice [...] Read more...
Latest News and Updates Webinar – 27th November 2021 Please join us on Saturday, 27th November at 2pm for our ‘Latest News and Updates’ [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Winter 2022 Newsletter The Winter 2022 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.