Membership

On joining the Cystinosis Foundation UK you will be sent our periodic newsletter. In addition, we will keep you informed of news and events, as and when they occur. Membership is currently free. If you would like to become a member of the Cystinosis Foundation UK, please complete our membership form, which you can print from your browser, and send it to:

Cystinosis Foundation UK
1 Butler’s Farm Court
Leyland
Lancashire
PR25 1LF

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News

December 29, 2018

Jonathan Terry Awarded MBE We are incredibly pleased to report that our founder, Jonathan Terry, has been awarded an MBE [...] Read more...

Events

November 14, 2018

National Cystinosis Study Day at The Priory Rooms, Birmingham NEW VENUE: The event will now be held at The Priory Rooms in Birmingham City Centre. The QE [...] Read more...

Stories

September 13, 2017

Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...

Newsletters

December 2, 2012

Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...

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