Membership

On joining the Cystinosis Foundation UK you will be sent our periodic newsletter. In addition, we will keep you informed of news and events, as and when they occur. Membership is currently free. If you would like to become a member of the Cystinosis Foundation UK, please complete our membership form, which you can print from your browser, and send it to:

Cystinosis Foundation UK
1 Butler’s Farm Court
Leyland
Lancashire
PR25 1LF

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News

May 16, 2018

Distal Myopathy Study – Participants Needed Dr. Florian Eichler, Associate Professor of Neurology at the Massachusetts General Hospital in [...] Read more...

Events

May 18, 2018

Penkridge Runners Raise Over £700 We’d like to say a big thanks to Michelle Hull, Tashaa Preece, Paula Kimberley and all [...] Read more...

Stories

September 13, 2017

Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...

Newsletters

December 2, 2012

Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...

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