Joined: Oct 2005
Hi, my name is Roy Forsyth and I live in the North East of Scotland. I became involved with the Cystinosis Foundation as my daughter is a sufferer. My wife and I initially discovered the Foundation on the internet and since then we have primarily been involved with fundraising for the research appeal. However, in 2005 I also joined the Foundation as a trustee and in 2009 became the chairperson.