Secretary – Ami Froehlich

Joined: January 2012

I was born in 1985 and I have nephropathic cystinosis. Thanks to the development of cysteamine therapy in the 80s I did not have my kidney transplant until 2009, which I received from my mum. I obtained a BSc degree in psychology in 2007 and since then have pursued a career in mental health. I currently work as a primary care mental health worker for Lancashire Care NHS trust, which involves facilitating guided self help interventions for patients with anxiety and depression. As a young adult living with cystinosis I feel I have a lot to offer the Foundation, from both personal experience and knowledge, as well as skills I have gained from my professional career.

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