Secretary – Ami Froehlich

Joined: January 2012

I was born in 1985 and I have nephropathic cystinosis. Thanks to the development of cysteamine therapy in the 80s I did not have my kidney transplant until 2009, which I received from my mum. I obtained a BSc degree in psychology in 2007 and since then have pursued a career in mental health. I currently work as a primary care mental health worker for Lancashire Care NHS trust, which involves facilitating guided self help interventions for patients with anxiety and depression. As a young adult living with cystinosis I feel I have a lot to offer the Foundation, from both personal experience and knowledge, as well as skills I have gained from my professional career.

Comments are closed.

New Cystinosis Study – CTNS Nonsense Mutation Screen The McGill University in Canada is looking for participants in Europe and North America for a [...] Read more...
Cystinosis Education Day, 19th September 2017 A ‘Cystinosis Patient and Clinician Education Day’ is being held on Tuesday 19th [...] Read more...
Derby Moor Student an Inspiration to Us All Derby Moor student Eeshar Seehra was thrilled to achieve 3 A Levels in Maths, Physics and [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday