SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Neil Sugden

Joined: January 2009

Hi. I am Neil Sugden. I was diagnosed in 2006 with non-nephropathic (ocular) cystinosis. I found the Foundation extremely helpful and supportive when I contacted them for information about the condition. I now hope I can give something back to the Cystinosis Foundation and help others who suffer from this rare condition.

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