Sponge Bob Money Saver
A big well done and thank you are due to the children and teachers of Broomgrove Infants in Wivenhoe, Essex who raised over £100 for the Cystinosis Foundation UK during May this year. The children…
Support The Super Cycle Challenge
Please support Tom Naysmith and John Eldridge as they tackle the 108 miles and 5000 meters of ascent (that’s 3 times Ben Nevis) on the famed La Marmotte Sportive in France on July 3rd. This…
Spey Side Walk Story
Our thanks go to Colin Buist for allowing us to publish his account of his epic Speyside Way adventure with friends and family in April of this year. And thank you to all those involved…
USA Research Fellowship Announced
The Cystinosis Research Network (USA) are pleased to announce they have awarded funding for a three year Cystinosis research fellowship. Read More…
CLIMB Newsletter Published
The May Newsletter Is Now Available The latest CLIMB newsletter has been released: Read the May Newsletter. Who are CLIMB? CLIMB (Children Living with Inherited Metabolic Disorders) are a national organisation working on behalf of…