Conferences

Our joint International Conference with CNE, held in Manchester in July 2024, was packed full of brilliant presentations by a range of contributors. We are delighted to be able to share with you a range of recorded outputs from what was an incredible event which truly did help us all feel ‘Better Together’. Watch our […]

We are looking forward with excitement to the CNE International Conference in Manchester that we are hosting on 26 and 27 July 2024. The conference will be based at a central Manchester hotel and we are delighted to announce that confirmed speakers include: • – Jordan Janz, adult with cystinosis and first participant in Dr Stephanie […]

The Cystinosis Network Europe (CNE) International Conference will be hosted by Cystinosis Foundation UK in Manchester, England, from 25th to 27th July 2024. The scientific meeting will be held on 25th July, with the family meeting on 26th and 27th July. Please save the date! We are delighted that Dr Graham Lipkin, consultant nephrologist at […]

On Saturday 10th Oct 2020 Cystinosis Foundation UK ran their first online Cystinosis Symposium, co-hosted by Metabolic Support UK as part of their 2020 Virtual Annual Conference. In a packed 2 hour session we heard from 4 contrasting speakers before opening up into a Q & A session, expertly moderated by Pushpa Hossein from MSUK. […]

As part of Metabolic Support UK’s 2 day virtual conference we are co-hosting a 2 hour interactive ‘Cystinosis Symposium’ breakout session on Saturday, 10th October 2020, 2-4pm. We’ll have the latest research updates, including the prodrug project that your donations have helped to fund. Plus, nephrologist Dr. David Game will be joining us, giving advice […]

Following the cancellation of the International Cystinosis Conference in July due to coronavirus, Cystinosis Ireland and Cystinosis Network Europe have announced their decision to hold a ‘Virtual International Cystinosis Conference’ online. This will take place on Saturday, 25th April, 1pm – 8pm CET (12pm – 7pm BST). We thoroughly recommend you virtually attend. You’ll be […]

UPDATE: This event has been cancelled, a virtual conference will take place instead, on 25th April (see https://www.cystinosis.org.uk/events/virtual-international-cystinosis-conference-25th-april-2020/). The 2020 Cystinosis Network Europe Conference takes place at the Royal Marine Hotel in Dublin, Ireland from July 10th to 12th. The event includes a lively and engaging agenda with doctors and researchers presenting research and best […]

The 2018 European Cystinosis Conference is taking place in Berlin, Germany from July 13th to 15th. The main theme of the conference is “Growing Up with Cystinosis – The Opportunities and The Challenges”. At the conference, doctors and researchers will present their latest findings. Patients and families meet, exchange, learn as well as educate. The […]

Cystinosis Foundation (based in the USA) have announced that the next international cystinosis congress is to take place at the Barcelo Valencia Hotel in Valencia, Spain between the 30th June and 2nd July, 2016. Valencia is the third largest city in Spain and is situated on the east coast. The last of these events took […]

The registration website for the 8th International Cystinosis Conference (24th-26th July 2014) is now live. Visit this link to view the conference agenda and find out how to register – http://www.agoralive.com/CystinosisFoundation/Event1/ We look forward to seeing you there!