Links

We have compiled a list of links to other relevant charities, organisations and sources of information regarding Cystinosis. If you feel there is something we should reference, or you find an incorrect link, please contact us – we encourage you to help us keep this site right!

Links to Cystinosis specific charities can be found on our Cystinosis Worldwide page.

Other Related Charities

Other Links

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Wendy Walks Again for Cystinosis Last year Wendy Exelby, whose son Adam has cystinosis, raised £400 for us by doing a sponsored [...] Read more...
National Cystinosis Study Day at QE Hospital, Birmingham The QE Hospital in Birmingham are hosting a ‘National Cystinosis Study Day’ on [...] Read more...
Derby Moor Student an Inspiration to Us All Derby Moor student Eeshar Seehra was thrilled to achieve 3 A Levels in Maths, Physics and [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
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