SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Links

We have compiled a list of links to other relevant charities, organisations and sources of information regarding cystinosis.

Links to cystinosis specific charities can be found on our Cystinosis Worldwide page.

Other Related Charities

Other Links

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Student Voice Prize 2024 Our chair, Will Newman, once again had the opportunity to get involved with the annual Student [...] Read more...
Watch back elements of our CNE International Conference 2024 – Better Together. Our joint International Conference with CNE, held in Manchester in July 2024, was packed full [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Spring 2025 Newsletter The Spring 2025 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
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