Links
We have compiled a list of links to other relevant charities, organisations and sources of information regarding cystinosis.
Links to cystinosis specific charities can be found on our Cystinosis Worldwide page.
Other Related Charities
- Metabolic Support UK
Patient organisation for inherited metabolic disorders. - Rare Disease UK
National Alliance for rare diseases by Genetic Alliance UK. - Kidney Care UK
Kidney patient support charity. - Kidney Research UK
Funds research into kidney disease.
Other Links
- Wikipedia
a definition of cystinosis. - Orphanet
Database of rare diseases, including information on cystinosis. - Recordati Rare Diseases
Pharmaceutical company producing medicines for treatment of cystinosis. - Organ Donation
Find out more about the NHS organ donation register. - Rare Renal
Information on cystinosis by The UK Kidney Association.