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The Robert Gordon University Receive £100,000 Grant

The Robert Gordon University has recently been awarded a grant of over £100,000 to continue its research into eye gels. The funding is provided by leading children’s medical research charity, Sparks, and will allow the… 

Over Quarter Of A Million Now Raised!!!

Only 9 months after I reported that our research funds appeal had raised over £200,000, it is incredibly pleasing for me to be able to report that we have now just topped the £250,000 mark… 

Foundation Looking For New Trustee

Would you like to be on the committee of the Cystinosis Foundation UK? Our charity is over 10 years old and during this time has run with a small committee of trustees who meet around… 

UK Conference Programme Now Available

The Cystinosis Foundation UK conference programme is now available. The conference takes place on September 24th at the Manchester Conference Centre and is due to start at 10.00 and expected to last until 17.00. View…