Who Are Orphan Europe
Orphan Europe were one of our sponsors at the Cystinosis UK conference held in Manchester in September this year for whom we were very grateful . This article explains who they are and what their…
Woman With Cystinosis Gives Birth
28-year-old Alison Kirk, from Wallasey, Wirral, has cystinosis and has been on kidney dialysis since she was 11. However, despite the odds, Alison gave birth to Gracie Mae on 21st November 2011, becoming one of…
Newsletter – November 2011
Issue 20 (November 2011) of our newsletter has recently been published and if you are a member of the Foundation you should receive your copy soon, or you can download it directly from the website…
Wrist Bands
We have a new stock of wristbands for sale. Please contact us if you wish to purchase any. They cost £2 each plus postage and packing. All monies raised go directly to the Foundation to…