We are delighted to announce that the 8th International Cystinosis Conference will be held in Manchester, UK in late July 2014. Further details of location and date will be issued soon. We are looking forward… 2014 International Conference
Riley was diagnosed with cystinosis, at the age of 16 months, in January this year. His family decided to try and raise money for Cystinosis Foundation UK. They immediately set up a JustGiving page and were overwhelmed with their friends… Sweet Success
The Trustees are delighted to welcome you to our new website. We hope you like the new design, which is meant to make it easier for you to find what you need. Massive thanks to… NEW WEBSITE
Congratulations to Damien Froehlich, Emily Froehlich, Cheryl Leigh and Lisa Tattersall, also known as Team Tache Dash for Cash, for completing the Bupa Great Manchester 10K Run on Sunday 26th May. They joined 40,000 other… Team Tache Dash for Cash at Great Manchester 10K Run!