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2014 International Conference

We are delighted to announce that the 8th International Cystinosis Conference will be held in Manchester, UK in late July 2014. Further details of location and date will be issued soon. We are looking forward… 

Sweet Success

Riley was diagnosed with cystinosis, at the age of 16 months, in January this year. His family decided to try and raise money for Cystinosis Foundation UK. They immediately set up a JustGiving page and were overwhelmed with their friends… 

NEW WEBSITE

The Trustees are delighted to welcome you to our new website. We hope you like the new design, which is meant to make it easier for you to find what you need. Massive thanks to…