January 2014 – Cystinosis Foundation UK

Save the Date! – 8th International Cystinosis Conference

by Tom Kelly
January 7, 2014

The 8th International Cystinosis conference is going ahead on the 24th to the 26th of July 2014 at the Renaissance Manchester City Centre Hotel. The conference programme and booking system will be online very soon.… Save the Date! – 8th International Cystinosis Conference

Bears, Bags, Quilts and Snakes for Cystinosis Foundation UK

by Tom Kelly
January 5, 2014

On Saturday 4 December, Marion Hutchison (Gran of Morven, age 4, who has cystinosis) and her friend Dorothy ran a pop-up shop in Selkirk in the Scottish Borders, selling handmade items and other bits and… Bears, Bags, Quilts and Snakes for Cystinosis Foundation UK