Rare Renal Registry
To all cystinosis patients… There are a few registry databases that from time to time you are asked to populate your details into, these are of course important. One that will become more important in… Rare Renal Registry
Registration Now Open! – 8th International Cystinosis Conference
The registration website for the 8th International Cystinosis Conference (24th-26th July 2014) is now live. Visit this link to view the conference agenda and find out how to register – http://www.agoralive.com/CystinosisFoundation/Event1/ We look forward to… Registration Now Open! – 8th International Cystinosis Conference