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Maddy’s Mad Mudders Get Muddy for Cystinosis

A group of adventurous fundraisers have recently completed a “Tough Mudder” challenge to raise money in honour of Madison, who has cystinosis. The event saw them taking on various obstacles and getting very muddy in… 

Charity Wristbands for Sale

Those of you who attended the conference in Manchester might have seen the Trustees sporting these fetching charity wristbands and wondered – where can I get hold of these? We are pleased to announce that… 

Charity Fun Day for Layla

A big fundraising fun day event is taking place in aid of Layla, a brave 3 year old girl who has cystinosis, with all proceeds benefiting Cystinosis Foundation UK. The event is taking place on…