Skip to content

Lena’s journey from patient to biomedical scientist offers a rare and inspiring glimpse into life with cystinosis

Diagnosed with nephropathic cystinosis at just seven months old, Lena spent years navigating a complex regimen of medications, blood tests, and hospital visits. Her curiosity about what happened to her blood samples led her to… Lena’s journey from patient to biomedical scientist offers a rare and inspiring glimpse into life with cystinosis