CNE Conference Update – December 2023
We are looking forward with excitement to the CNE International Conference in Manchester that we are hosting on 26 and 27 July 2024. The conference will be based at a central Manchester hotel and we…
Summer 2023 Newsletter
The Summer 2023 edition of our email newsletter is available to view at the link below. CFUK Newsletter – Summer 2023 This includes: – NHS England Awards Funding for New Cystinosis Service – Student Voice…
CNE International Conference
The Cystinosis Network Europe (CNE) International Conference will be hosted by Cystinosis Foundation UK in Manchester, England, from 25th to 27th July 2024. The scientific meeting will be held on 25th July, with the family…
Novartis Gene Therapy Update
We have received this message from Novartis regarding their gene therapy program for cystinosis: “Dear Cystinosis Community, In May 2023, Novartis acquired the investigational autologous hematopoietic stem cell (HSC) gene therapy program for the treatment…